What Is Sarcoma UK?
Sarcoma UK is the national sarcoma charity in the UK. It provides information about sarcoma, emotional and practical support for people affected by sarcoma, and funds research into the disease. Its website, sarcoma.org.uk, is the main entry point for all three.
If you or someone you know has been diagnosed with sarcoma, or you are concerned about it, the site is organised around what you need at that moment: understanding the cancer, finding support, or getting involved with the charity.
What sarcoma is, in the charity's own framing
Sarcoma UK describes sarcomas as uncommon cancers that can affect any part of the body. That rarity is central to the charity's message — its homepage heading reads "Not everyone understands sarcoma. We do." — and it explains why the site puts so much emphasis on explaining the basics before anything else.
What the website offers
The site is structured into four main areas:
| Area | What it covers |
|---|---|
| About sarcoma | What sarcoma is, whether you might have it, referral explained, types of sarcoma |
| Diagnosing and treating | Diagnostic scans, staging and grading, treatment types, specialist centres, multidisciplinary teams |
| Get support | Emotional support, practical support, support for children/teenagers/young people, rehabilitation, living with and beyond sarcoma, financial support |
| Get involved | Challenges, volunteering, the Involvement Network, donating, policy and public affairs |
Two features are worth knowing about specifically:
- Clinical Trials Hub — described on the site as a way to "find an open trial near you."
- Patient guides — the charity offers "high quality, up-to-date information for sarcoma patients" that you can order.
There is also a Sarcoma UK Support Line, described as friendly, expert, confidential and free advice, and support groups that meet across the UK and online.
If you are supporting someone else
The site has a dedicated section for people who know someone with sarcoma, covering supporting someone with sarcoma, support for family and friends, and support for carers. This matters because sarcoma's rarity often means friends and family have never encountered it before.
Research and where donations go
Sarcoma UK states that it only funds research which will be most beneficial to sarcoma patients, and describes funding "world-class science to understand sarcoma better, improve treatment" as part of its mission. If you want to know how the charity is governed or how funds are allocated, that detail sits in the About us and Research sections rather than the homepage.
Practical notes before you use the site
- The site uses Google Translate for translation, and the charity notes this may not be 100% accurate.
- All assets — videos, PDFs and images — are in English only, and the same applies to page searching and external forms.
- The site is in British English (en-GB), so spelling and terminology follow UK usage.
When this site is the right starting point
Use sarcoma.org.uk if you want plain-language information about sarcoma, need to find patient guides or an open clinical trial, want to contact a support line or join a support group, or want to donate or volunteer. If you are looking for a diagnosis or individual medical advice, the site is an information and support resource — it points you toward specialist centres and multidisciplinary teams rather than replacing them.