Where to Find Sarcoma Diagnosis and Treatment Information on Sarcoma UK
Sarcoma UK (sarcoma.org.uk) organises its clinical information under About sarcoma in the main navigation. If you have been diagnosed with, or are being investigated for, sarcoma, the most useful path is: start with What is sarcoma? for background, move to Diagnosing sarcoma for the referral, scan, staging and grading pathway, then go to Treating sarcoma for treatment types, specialist centres and the multidisciplinary team (MDT). From there you can branch into the Clinical Trials Hub or order patient guides.
The main information sections
The site's own navigation lists these pages under About sarcoma:
| Section | Pages within it | What it covers |
|---|---|---|
| About sarcoma | What is sarcoma? | General explanation of the disease |
| Do I have sarcoma? | Symptoms and when to seek help | |
| Your referral explained | What happens when you are referred | |
| Types of sarcoma | The different forms of sarcoma | |
| Diagnosing sarcoma | I've been diagnosed with sarcoma | What a diagnosis means |
| Diagnostic scans | Imaging used in diagnosis | |
| Staging and grading | How far the disease has spread and how aggressive it is | |
| Treating sarcoma | Treatment types | The treatment options available |
| Sarcoma specialist centres | Where specialist care is delivered | |
| Multidisciplinary team (MDT) | Who is involved in treatment decisions |
How to move through it in order
- Background first — What is sarcoma? explains that sarcomas are uncommon cancers that can affect any part of the body. This is the page to read if you are starting from scratch.
- If you are worried but not diagnosed — Do I have sarcoma? and Your referral explained cover symptoms and what a referral involves.
- If you have been diagnosed — go to Diagnosing sarcoma, then work through Diagnostic scans and Staging and grading. Staging and grading are the two pieces of information that shape which treatments are offered.
- For treatment decisions — Treating sarcoma contains Treatment types, plus Sarcoma specialist centres and Multidisciplinary team (MDT), which explain where and by whom treatment is planned.
- For trials and written guides — the Clinical Trials Hub lets you "find an open trial near you", and Patient guides lets you "order high quality, up-to-date information for sarcoma patients."
Support alongside the clinical information
The Get support area sits separately from the clinical pages and covers emotional support, practical support, rehabilitation, living with and beyond sarcoma, and financial support. There is also a Sarcoma UK Support Line, described on the site as "friendly, expert, confidential and free advice", and support groups that meet across the UK and online. If you are supporting someone else, there are dedicated pages under Someone I know has sarcoma for family, friends and carers.
Practical notes
- The site states it uses Google Translate for translation, and warns that this "might mean the translation is not 100% accurate." All assets including videos, PDFs and images are in English only, and the same applies to page searching and external forms.
- The navigation also includes a Healthcare professionals section and a Research section, which are aimed at clinicians and researchers rather than patients.
- No pricing or login requirements are stated in the site information for these information pages.