What Support Does Sarcoma UK Offer for Patients, Families and Carers?
Sarcoma UK provides information and support for anyone affected by sarcoma, including patients, family members, friends and carers. Its support pages cover emotional support, practical support, financial support, rehabilitation, what to do if sarcoma comes back, and end of life and bereavement support. There is also dedicated content for children, teenagers and young people, and for people supporting someone with sarcoma. The charity runs a Support Line and support groups across the UK and online.
Emotional and practical support
Sarcoma UK groups its help under "Get support", with separate sections for:
- Emotional support – for the emotional impact of a sarcoma diagnosis and treatment.
- Practical support – day-to-day help for people living with sarcoma.
- Support for children, teenagers and young people – content aimed at younger people affected by sarcoma.
- If sarcoma comes back – guidance for people whose sarcoma returns.
- End of life and bereavement support – support for the final stages of illness and for people who have been bereaved.
These sections are written for patients, but family members and carers can use them too.
Support for family, friends and carers
Sarcoma UK has a dedicated area called "Someone I know has sarcoma", which includes:
- Supporting someone with sarcoma
- Support for family and friends
- Support for carers
This is the starting point if you are not the patient but want to know how to help, what to expect, or where to get support for yourself.
Rehabilitation, living with sarcoma and financial support
Under practical support, Sarcoma UK covers:
- Rehabilitation Hub – information on rehabilitation after sarcoma treatment.
- Living with and beyond sarcoma – support for life during and after treatment.
- Financial support – guidance on money matters related to sarcoma.
How to contact Sarcoma UK for support
Sarcoma UK describes its Support Line as friendly, expert, confidential and free advice. It also lists support groups that meet across the UK and online. To use either, start from the "Get support" section of the website and follow the Support Line or support groups links.
Where to find diagnosis and treatment information
If you are looking for information about diagnosis or treatment rather than support, Sarcoma UK separates these into their own sections:
- About sarcoma – what sarcoma is, do I have sarcoma, your referral explained, types of sarcoma.
- Diagnosing sarcoma – diagnostic scans, staging and grading.
- Treating sarcoma – treatment types, sarcoma specialist centres, multidisciplinary team (MDT), and a Clinical Trials Hub to find an open trial near you.
- Patient guides – high quality, up-to-date information for sarcoma patients that you can order.
Things to know before you use the site
Sarcoma UK states it uses Google Translate to translate the website, and that the translation may not be 100% accurate. All assets including videos, PDFs and images are in English only, and this also applies to page searching and external forms. If you need information in a language other than English, keep this limitation in mind.
The site also notes that it only funds research which will be most beneficial to sarcoma patients, which is relevant if you are looking at its research pages rather than its support pages.