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EnglishCan parents and families find child continence resources on the ICCS website?
Updated
Yes. The ICCS website includes a dedicated For Parents & Families section in its main navigation, alongside professional areas such as About, Board, Events, Presentations, Position Docs and E-Learning. The site is built primarily for specialists, but that family entry point makes it usable for caregivers who want orientation on children's bladder storage and evacuation problems.
What the ICCS is, in one paragraph
The International Children's Continence Society (ICCS) describes itself as an association bringing together specialists active in pediatric continence disorders. Its stated fundamental goal is to improve quality of life and life expectancy for growing individuals with deficient bladder function, expressed as problems of storage and evacuation of urine, by increasing knowledge across all aspects of this problem area. That framing tells you what the family section is likely to cover: not general parenting advice, but the bladder-function issues the society exists to address.
Where families fit on the site
| Area | Primary audience | What a parent should expect |
|---|---|---|
| For Parents & Families | Caregivers | The intended starting point for family-facing material |
| About / Board / Position Docs | Clinicians and members | Organizational and professional-position content |
| Events / Presentations / E-Learning | Specialists, trainees | Congress and webinar material, generally clinical in depth |
| Members / Join ICCS | Professionals | Membership for specialists, not a family service |
The practical distinction: the professional sections assume clinical vocabulary and are aimed at people who treat these conditions. The family section is the part written for the household dealing with the problem day to day.
How to get there from the homepage
- Open i-c-c-s.org.
- In the top navigation, select For Parents & Families.
- Read that section first; use About only if you want the society's scope and mission, and Events if you are looking for a webinar rather than written guidance.
Expected result: you land on family-oriented content instead of congress abstracts or board notices.
What the site does and does not do
The homepage evidence shows the society's knowledge-sharing activity through events, including a webinar on ketamine-induced uropathy and the ICCS Annual Congress 2026 (November 4–7), plus news items on board vacancies and a joint congress in Louisville, Kentucky. These are professional activities. Nothing in the available material indicates the site offers individual case advice, appointment booking, or a directory of clinicians for families. Treat it as an educational and organizational resource, and take specific clinical decisions to a qualified professional.
The site also states that ICCS is an independent, nonprofit organization whose board and associated experts are unpaid, with running costs covered by membership fees and unconditional educational grants from the medical industry under contracts protecting independence. That is useful context when judging the material's standpoint, but it does not change what the family section is for.
Common sticking points
- Landing in the wrong section. The homepage leads with society news and events; if the content looks like conference material, you are outside the family area.
- Expecting a diagnosis tool. The site explains the field and shares knowledge; it does not assess a child.
- Language. The site is in English, and the listed webinar language is English, so plan for that if English is not your first language.
- Time-sensitive items. Event dates and news on the homepage change; check the Events area rather than relying on a summary elsewhere.
If your goal is to understand what storage and evacuation problems mean for a child's bladder function, start with For Parents & Families. If your goal is a decision about your own child's care, use the site for background and bring the question to a clinician.