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EnglishHow to Contact NDSS and Follow the Organization on Social Media
Updated
The National Down Syndrome Society (NDSS) can be reached by phone through its toll-free helpline at 800-221-4602, available Monday through Friday, 9AM–5PM ET, or by mail at its Washington, DC office: 1155 15th Street NW, Suite 540, Washington, DC 20005. For written inquiries, the site directs visitors to its Contact us page. NDSS also maintains official accounts on Facebook, X, Instagram, YouTube, LinkedIn, and TikTok.
Contacting NDSS
Phone
| Channel | Number | Hours |
|---|---|---|
| NDSS Helpline (toll-free) | 800-221-4602 | Mon–Fri, 9AM–5PM ET |
The helpline is the number NDSS lists publicly on its site. If you reach out outside the stated weekday window, expect to follow up during the next business-hours period.
National Down Syndrome Society
1155 15th Street NW
Suite 540
Washington, DC 20005
Online
The site's footer includes a Contact us link for inquiries that aren't handled by phone or mail. Use this route when you need a written record of your message or want to reach a specific department rather than the general helpline.
Following NDSS on Social Media
NDSS lists six official channels in its footer:
- X
- YouTube
- TikTok
These are the accounts NDSS itself links to, so they're the reliable starting point if you want updates on news, events, and campaigns without going through the main website each time.
What You'll Find Beyond Contact Info
The same footer that carries the contact details also links to sections on About Down Syndrome, Work for NDSS, Resources, Shop NDSS Gear, Financials, Newsroom, and the Privacy Policy. If your reason for contacting NDSS is actually to find information, check these sections first — many common questions about Down syndrome resources and organizational policies are answered there without needing to call.
Common Questions
Is the helpline free? It's listed as a toll-free number (800 prefix), so calls within the US aren't charged by NDSS.
Can I visit the DC office? The site publishes the address for correspondence but doesn't state walk-in hours or visitor policies, so call ahead before planning a visit.
Which social platform should I use? All six are official. Pick based on how you prefer to consume updates — for example, YouTube for video content, LinkedIn for organizational and professional news, or Instagram and TikTok for shorter visual posts.
Where do I send a press inquiry? The site separates a Newsroom section from general contact, so route media requests there rather than through the helpline.