How to Find HHT Care or a Center of Excellence Near You

Cure HHT points people with HHT toward two routes for specialist care: an HHT Center of Excellence, where multiple specialists coordinate around the same patient, or an HHT-experienced physician closer to home. There are 55+ HHT Centers of Excellence worldwide, according to Cure HHT. The right choice depends on how far you can travel, how complex your symptoms are, and whether you already have a local doctor willing to coordinate with an HHT expert.

Start With the Type of Care You Need

Cure HHT organizes its navigation around who you are and what you need right now. If you are newly diagnosed, the starting point is learning what to screen for and how to build a care plan. If you are specifically looking for medical care, the relevant path is finding a Center or an HHT-experienced physician.

HHT is a whole-body disease: it causes malformed blood vessels in multiple organs, often beginning with nosebleeds in childhood, and some of its most serious complications can exist without obvious symptoms. That is why Cure HHT describes Centers of Excellence as bringing specialists together around the same patient rather than sending you to a single organ specialist.

What an HHT Center of Excellence Offers

An HHT Center of Excellence is a site where the specialties HHT touches — such as ENT, pulmonology, neurology, and genetics — work together on one patient. Cure HHT reports 55+ such centers worldwide.

This matters because HHT screening and monitoring crosses organ systems. A center is generally the more practical option when you need coordinated screening, when symptoms span more than one organ, or when a local physician is unfamiliar with HHT.

When a local HHT-experienced physician may be enough

If travel to a center is difficult, Cure HHT also offers a way to find an HHT-experienced physician near you. This can work as a first step or as ongoing local care, with the physician coordinating with a center when needed. The trade-off is coordination: a single experienced physician may not have the same multi-specialty setup as a center.

How to Use Cure HHT's Navigation

Cure HHT's site is structured as a set of paths rather than one search box. To find care:

1. Go to curehht.org.
2. Choose the path that matches your situation — for care, the "I need HHT care" route.
3. Use that route to find a Center of Excellence or an HHT-experienced physician near you.
4. If you are newly diagnosed, start with the newly diagnosed path first to understand what to screen for and what your family may need to know, then look for care.

The expected result is a specific next contact — a center or physician — rather than general information.

Why Finding Care Matters

Cure HHT cites these figures:

The 80% undiagnosed figure is the reason Cure HHT frames its goal as finding HHT sooner. If you have a diagnosis, you are already past the step most people are stuck at — and the care-finding step is what comes next.

Common Questions

Do I have to travel to a Center of Excellence? Not necessarily. Cure HHT offers both a Center finder and a way to find an HHT-experienced physician near you. A center is the more coordinated option; a local physician may be more practical.

How many centers are there? 55+ worldwide, per Cure HHT.

What if I was just diagnosed? Cure HHT's newly diagnosed path covers what to screen for, how to build a care plan, and what your family may need to know. Care-finding is a separate path on the same site.

Can I stay informed while I look? Cure HHT invites people to join its community for research breakthroughs, patient stories, and webinar invites.