How to Get Involved With ICP Care: Registry, Newsletter, Donations, and Awareness

ICP Care offers four concrete ways to get involved: joining the ICP Patient Registry (open internationally), subscribing to the mailing list, donating to fund its mission, and taking part in awareness and remembrance efforts such as October Pregnancy and Infant Loss Awareness Month. Which one fits you depends on whether you are a patient who wants to contribute to research, someone who wants ongoing updates, or a supporter ready to give.

Join the ICP Patient Registry

The registry is the organization's research-facing option and is described as open internationally. ICP Care states that because ICP is a rare disease, the more participants who share their pregnancy journey, the more can be learned to improve care, treatment, and support.

• Who it's for: Anyone who has been diagnosed with Intrahepatic Cholestasis of Pregnancy and is willing to share their pregnancy experience.
• What it asks of you: Contributing information about your own pregnancy journey.
• What it's meant to change: Future management of ICP, based on pooled participant data.

If your goal is to help improve how ICP is managed for the next patient rather than to receive services yourself, this is the most direct route.

Subscribe to the Mailing List

ICP Care's newsletter is the low-commitment way to stay connected. The site describes it as a way to "stay in touch with the latest information about our mission, events, volunteer opportunities, and more."

Choose this if you want updates without donating or enrolling in research, or if you are waiting to decide how else to participate. Note that the site lists "subscribe" among its sign-up language but does not publish pricing details for the newsletter, so treat any cost or access terms as unconfirmed until you see them at sign-up.

Donate to Support the Mission

ICP Care frames donations around a specific milestone: "Celebrating Ten Years of Saving Lives." The site asks supporters to help reach a giving goal so the organization can carry through its mission, and points to a 10-year anniversary page for details on how to help.

There is also a seasonal giving appeal: from October 1 through December 31, 2026, the organization invites gifts to support families affected by ICP and to work toward "a future where no baby is lost to a preventable stillbirth." The site does not publish specific donation amounts, tiers, or payment platforms in the material available, so check the donation page itself for current options.

Take Part in Awareness and Remembrance

ICP Care marks October as Pregnancy and Infant Loss Awareness Month, honoring and remembering babies lost, including those of ICP Care members. This is the involvement path for people who want to participate publicly rather than financially or through research — reading and sharing the related posts, or joining remembrance efforts, requires no application or payment.

Which Option Fits You

A Note on Scope

The site's central message is "Fight the Itch. Save a Life." and "Don't Ignore the Itch" — the itch is treated as the warning sign that brings people to a diagnosis in the first place. If you have not yet been diagnosed and are looking for clinical guidance, the involvement options above are not a substitute for care; they are ways to contribute to and stay connected with the ICP community after or alongside a diagnosis.