How to Get Involved with the National Down Syndrome Congress

The National Down Syndrome Congress (NDSC) offers several ways to get involved through its website, ndsccenter.org. You can donate to support its mission, follow its policy and advocacy work, and learn about events such as its annual convention. The site organizes these options around a "Get Involved" entry point and a "Donate Now" call to action, with news and policy updates published under "News & Notes."

Ways to Support the NDSC

Donate

The site's donation section explains the purpose behind giving: supporting the NDSC's work to promote the interests of people with Down syndrome, educate through awareness, advocate for rights, empower, and reshape how people understand and experience Down syndrome. A "Donate Now" link is presented directly on the homepage.

The site also publishes policies related to giving, including a Donation Refund Policy and an Automated Recurring Donation Cancellation policy, so donors can review the terms before or after contributing.

Follow Policy and Advocacy Work

The NDSC maintains a policy and advocacy presence, and the homepage points visitors to "The Policy Pulse" for updates from its Policy & Advocacy team. Recent published items give a sense of the topics covered:

• A February 6, 2026 News & Notes piece highlighting Black people with Down syndrome during Black History Month, written by NDSC Policy & Advocacy Assistant Micah Rothkopf and Crystal Lotterberry, co-founder of the Black Down Syndrome Association.
• An April 10, 2025 statement on the House budget resolution, describing the 216–214 vote and its directives for federal spending cuts.
• A March 28, 2025 statement on the Administration for Community Living (ACL), responding to the U.S. Department of Health and Human Services' announcement to eliminate thousands of staff and reorganize ACL functions across other agencies.

Following these updates is a way to stay informed about issues affecting people with Down syndrome and to understand where the organization directs its advocacy.

Attend the Annual Convention

The homepage references a "2025 Convention Sponsors" section, indicating that the NDSC holds an annual convention with sponsor involvement. Checking the site's convention-related pages is the way to learn about attending, sponsoring, or participating in these events.

What the Site Is Built Around

The NDSC frames its work with the tagline "Educate • Advocate • Empower • Inspire," and the homepage is structured to move visitors toward involvement rather than to serve as a general information portal. Key elements include:

Practical Notes

• The site lists a Privacy Policy and Terms & Conditions alongside its donation policies, so review these if you plan to give or share information.
• The homepage includes a "subscribe" signal, suggesting you can sign up for updates, but the specific terms of any subscription are not detailed in the available page content.
• Pricing, membership fees, and login requirements are not specified in the source material, so check the relevant pages directly before assuming any cost or access condition.

If your goal is to support the organization financially, start with the Donate Now link and read the refund and recurring donation policies. If your goal is to stay informed or engage with advocacy, follow The Policy Pulse and News & Notes. If you want to participate in person, look into the annual convention and its sponsor information.