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EnglishWhat Is Cancer Nation's Annual Survivorship Survey and What Is It Used For?
Updated
Cancer Nation (formerly NCCS) runs an annual Survivorship Survey to understand how patients and survivors are living with, through, and beyond cancer. The organization describes the study as capturing a range of perspectives so it can better understand how to support its mission of advocating for quality cancer care for all. If you want to go deeper, the site points visitors to a "Learn More and Request Data Here" link for further information and data access.
What the survey is designed to capture
Based on the site's description, the survey is not a single-topic poll. It is intended to collect a range of perspectives from people at different points in the cancer experience — those currently in treatment, those recently finished, and longer-term survivors. The stated purpose is to see how patients and survivors are actually living during and after a diagnosis, which in turn informs how Cancer Nation directs its advocacy.
How the findings are used
The site ties the survey directly to the organization's mission: advocating for quality cancer care for all. In practical terms, that means survey results are positioned as evidence the organization can use to understand survivor needs and support its advocacy work. The page does not publish a detailed methodology, sample size, or list of specific policy uses, so treat those details as things to confirm through the "Learn More and Request Data" route rather than assume.
Who the survey is relevant to
| Reader | Why it matters |
|---|---|
| Patients and survivors | The survey is about their experience; the site also invites people to share their story separately |
| Researchers or advocates | Data can be requested through the linked page |
| People new to Cancer Nation | The survey is one of the main ways the organization describes its work |
How to follow up
- Go to the Cancer Nation site and find the Survivorship Survey section on the homepage.
- Use the "Learn More and Request Data Here" link to read further details and ask about accessing data.
- If your interest is participation rather than data, note that the site separately invites survivors to share their story as part of the national survivorship movement.
Common sticking points
- Data access is not automatic. The site frames data as something you request, so expect a follow-up step rather than an instant download.
- Survey details are thin on the homepage. Specifics like sample size, question topics, and publication of results are not spelled out there; the linked page is the place to check.
- Don't confuse the survey with the Advocates program. Cancer Nation Advocates is a separate program focused on learning how policy shapes health care; the survey is a research effort.
For the broader picture of what the organization offers, see the related question on what Cancer Nation (formerly NCCS) is and what its website provides.