What is CBBF (Children's Brittle Bone Foundation)?

Updated

CBBF is the Children's Brittle Bone Foundation, a nonprofit organization focused on osteogenesis imperfecta (OI), a genetic bone disorder often called "brittle bone disease." According to its website, CBBF has raised more than $18 million for research into the causes, diagnosis, treatment, prevention, and eventual cure of OI. It also funds clinical research programs, awards grants, and runs fundraising events such as an annual golf outing.

What CBBF Does

CBBF's work centers on research funding and related programs rather than direct patient care.

  • Research grants: CBBF supports research into OI and has broadened its grant mechanism over time to include more clinical concerns.
  • Linked Clinical Research Center (LCRC): In 2006, CBBF launched this program in concert with the OI Foundation. The site describes the LCRC as driving innovation in OI research and treatment.
  • Grant recipients: The site lists past grant recipients and provides information on applying for a grant.
  • Awareness and community: CBBF publishes newsletters, maintains a calendar of events, and shares photos and organizational news.

Ways to Get Involved

Activity What the site says
Donate Online donations are accepted on a secured server; CBBF states donations are 100% tax deductible and go directly to those who need it most
Golf outing An annual fundraising event with a live auction, "hero grants," and more
Volunteer The site lists volunteering as an option under "Take Action"
Join the board CBBF invites people to join its board
Corporate partnership Businesses can become corporate partners

Who Runs It and How to Reach It

CBBF's site lists a board of directors and a general overview under "About Us." Contact details provided are:

  • Email: available through the site's contact link
  • Mail: Children's Brittle Bone Foundation, PO BOX 2462, Chicago, IL 60690
  • Phone: (773) 236-2223

Is CBBF the Right Organization for You?

CBBF is relevant if you are looking to support OI research financially, apply for a research grant related to OI, or participate in its fundraising and volunteer activities. If you are seeking clinical care or patient services, the site points toward research and grant programs rather than treatment; the OI Foundation is referenced as a partner in the LCRC program and may be a better starting point for patient-facing resources.