What Is joejohnson.net?

Updated

joejohnson.net is the personal website of Joe Johnson, an Internet engineer in Worcester, MA. It is not a company, store, or news site. It is a small personal hub that carries on the mission of an earlier dial-up bulletin board system called "Call Again Soon," which Joe ran for people affected by Leukodystrophy and for the people who know and love them.

The site is best understood as two things at once: a personal home page for Joe Johnson, and a long-running information point for Leukodystrophy and rare disease resources.

Who runs it

The site is written and maintained by Joe Johnson. According to the site's own text, he holds an MSIE (Master of Science in Internet Engineering) and works as an Internet Engineer. He signs the site from Worcester, MA 01605, and notes that he goes by the nickname joemsie on most social networking sites.

His stated reason for building the site is personal. Computers, databases, and online communities, in his words, "contributed to the survival of my son, Joey." Through a worldwide online community, the family found DHA in time to save Joey's life. That experience is the origin story behind both the BBS and this website.

What you will find on the site

The page is organized into a few main sections:

Section What it covers
About Joe Johnson His background, his work as an Internet Engineer, and why he built the site
Leukodystrophy Info A pointer to his Adrenoleukodystrophy Resources page for Leukodystrophy and rare disease information
About "Call Again Soon" The history of the original BBS and how this site continues it

There are also links to related material, including DHA information and DHA links, chemical Leukodystrophy resources, a resume, reunion photographs, and a set of "Joe's Favorite Links."

The "Call Again Soon" history

"Call Again Soon" started as a pre-Web BBS: a multi-phone-line computerized information exchange system. Key facts from the site:

  • It was dedicated to Joe's son Joey and to everyone affected by Leukodystrophy.
  • It operated out of Worcester, MA on three phone lines.
  • It used TriBBS software.
  • It supported over 300,000 logins since starting in 1990.
  • It served as a major hub for the QWK mail network called the World Message Exchange (WME).

Joe began collecting NALD (neonatal adrenoleukodystrophy) information in 1990 using online databases and resources available through CompuServe. That work grew into the BBS and later into this website. The current site explicitly "replaces the Call Again Soon BBS" and carries on its dedication.

Who this site is for

  • Families and individuals affected by Leukodystrophy who are looking for information and a sense of community.
  • Friends and caregivers of those affected, who want context on the disease and on the history of this resource.
  • Anyone trying to identify the site — for example, if you arrived from an old link, a search result, or a reference to the Call Again Soon BBS, this page confirms it is Joe Johnson's personal continuation of that project.

Practical notes

  • The site is informational and personal, not commercial. The page shows no pricing, products, or payment options.
  • The copyright line reads "© Joe Johnson 1998–2012," with "Optimized by iMedia Solutions" and a reference to "Joemsie Tech, LLC." That suggests the visible content dates from that era, so treat it as an archival personal resource rather than a frequently updated site.
  • If you are looking specifically for Leukodystrophy or rare disease information, the site directs you to Joe's Adrenoleukodystrophy Resources page rather than hosting everything on the home page.

In short: joejohnson.net is Joe Johnson's personal site, built to keep the Call Again Soon community alive and to point people affected by Leukodystrophy toward useful information.