What Is the International Bureau for Epilepsy (IBE) Website?

Updated

ibe-epilepsy.org is the official website of the International Bureau for Epilepsy (IBE), an organisation of laypeople and professionals interested in the non-medical aspects of epilepsy. It is a news, events, and advocacy hub rather than a clinical resource: visitors can follow IBE's policy work, read announcements affecting the epilepsy community, and find information on upcoming congresses and summits. It is most useful to people with epilepsy, patient organisations, policymakers, clinicians, and researchers who want to track non-medical developments in the field.

What IBE Is and Who It Serves

IBE describes itself as an organisation of laypersons and professionals focused on the non-medical side of epilepsy. That framing matters: the site is not a treatment guide or a symptom reference. Its audience, based on the content it publishes, includes:

  • People living with epilepsy and their families
  • Patient associations and advocacy groups
  • Policymakers and public health officials
  • Clinicians and researchers working alongside the non-medical community

If you are looking for clinical guidance on seizure types or medication, this is not the primary destination. If you want to understand how epilepsy is being addressed in policy, rights, and public awareness, it is directly relevant.

What the Site Publishes

The homepage is organised around news and events. Recent items show the range of activity:

Item What it covers
European Epilepsy Summit 2026: From Evidence to Action A Brussels event on 4 November 2026 bringing together people with epilepsy, patient organisations, policymakers, clinicians, and researchers to measure progress and turn evidence into action
New Rights Charter for Rare and Complex Epilepsies A charter setting out 10 rights to support better continuity of care for people with rare and complex epilepsies
IBE at the 16th European Epilepsy Congress 2026 IBE's presence at EEC 2026 in Athens, Greece, 5–9 September 2026, organised by ILAE
PARLASUR Public Hearing Momentum-building for a Latin American Epilepsy Awareness Week
Global Policy Advocacy Report Launched at the World Health Assembly

The pattern is consistent: IBE reports on its own advocacy, publishes position documents such as rights charters, and announces events where the epilepsy community meets policymakers and clinicians.

How to Use the Site

  1. Check the news section for announcements on advocacy campaigns, charters, and reports. This is where IBE's policy positions appear first.
  2. Look at the events listings if you want to attend or follow summits and congresses. Note that some events, such as EEC 2026, are organised by partner bodies like ILAE, with IBE participating.
  3. Read the advocacy reports if you need evidence or framing for policy work, such as the Global Policy Advocacy Report launched at the World Health Assembly.
  4. Verify unexpected emails. The homepage carries a warning about email phishing scams in which fraudulent messages claim to come from IBE Executive Committee members. IBE states these emails are fraudulent and unrelated to the organisation. If you receive an uninvited message purporting to be from IBE, treat it with caution and confirm through official channels.

What to Expect and What Not To

The site is a window into IBE's non-medical mission: rights, awareness, policy, and community events. It does not present itself as a source of medical advice, and the homepage content supports that reading. Pricing or membership details are not indicated in the available material, so do not assume free access to every resource or event without checking the relevant page.

For a quick orientation, start with the latest news items and the events calendar. If your interest is in epilepsy advocacy, rights charters, or global policy engagement, the site is a direct and current source.