What Is the National Down Syndrome Society (NDSS) Website?

Updated

ndss.org is the official website of the National Down Syndrome Society (NDSS), a nonprofit organization whose stated mission is "to create a world where individuals with Down syndrome thrive." The site serves as a hub for information about Down syndrome, organizational news and policy positions, ways to get involved (events, fundraising, and giving), and a shop for NDSS gear. It also lists a toll-free helpline and a mailing address for direct contact.

What you'll find on the site

The main navigation and homepage content point to several core areas:

  • About Down Syndrome — background information on Down syndrome.
  • Resources — support and informational materials.
  • Newsroom — press releases, policy statements, and organizational news.
  • Shop — NDSS-branded gear.
  • Get involved — events, fundraising campaigns, and donation programs.

The footer also links to pages on working for NDSS, financials, and the privacy policy.

Events and campaigns

Buddy Walk®

NDSS hosts the NDSS NYC Buddy Walk®, its flagship awareness and fundraising event. The site also notes that the Buddy Walk® is used to highlight 500+ faces in Times Square.

Team NDSS in Paris

NDSS recruits runners for charity marathon teams in Paris, with applications open for:

  • Hoka Semi De Paris Half Marathon — March 7, 2027
  • Schneider Electric De Paris Full Marathon — April 11, 2027

Everyday giving

NDSS partners with Upside, a free cash back app that rewards purchases at gas stations, grocery stores, and restaurants. Users can choose to donate their earned cash back to NDSS.

News and policy

The Newsroom carries press releases and official statements, including a policy statement on Texas v. Kennedy, a feature titled "Assume I Can: A Celebration of Artists With Down Syndrome," and the launch of "MinDSet Down Syndrome." These are the places to check for NDSS's public positions and current announcements.

Contact and support

  • Toll-free NDSS Helpline: 800-221-4602
  • Phone hours: Monday–Friday, 9AM–5PM ET
  • Address: 1155 15th Street NW, Suite 540, Washington, DC 20005
  • A contact form is also available on the site.

Who this site is for

ndss.org is useful if you want to learn about Down syndrome, follow NDSS policy and advocacy positions, find support resources, donate or fundraise, register for an NDSS event, or reach the organization directly. The site does not publish pricing for its programs or indicate whether any services require payment or login, so treat those details as unconfirmed unless stated on the specific page you use.