What recent advocacy and policy news has IBE published?

The International Bureau for Epilepsy (IBE) has recently published advocacy and policy updates covering four main areas: the European Epilepsy Summit 2026, a new rights charter for rare and complex epilepsies, a global policy advocacy report launched at the World Health Assembly, and its participation in the 16th European Epilepsy Congress. These items are listed on the IBE website (ibe-epilepsy.org) and are relevant if you want to follow, cite, or participate in IBE's non-medical advocacy work.

European Epilepsy Summit 2026: From Evidence to Action

IBE will bring together people with epilepsy, patient organisations, policymakers, clinicians, researchers, and other stakeholders in Brussels on 4 November 2026. The stated purpose of the day is to measure progress, identify gaps, and turn evidence into action.

This is the item to follow if your interest is in policy dialogue and cross-stakeholder coordination rather than clinical research. The announcement describes the event's aims but does not list a detailed programme or registration terms on the page excerpt.

New Rights Charter on Continuity of Care

IBE is part of the collaboration behind the Rare and COMPLEX Epilepsies Continuity of Care Rights Charter. The charter sets out 10 rights intended to support better continuity of care for people living with rare and complex epilepsies.

If you work with a patient organisation or are preparing a policy submission, this charter is the most directly citable document among the recent items, because it states its content as a defined set of rights.

Global Policy Advocacy Report at the World Health Assembly

IBE launched a new global policy advocacy report at the World Health Assembly. This is the item to check if you need IBE's positioning at the international (rather than European) level. The excerpt confirms the launch and its setting but does not summarise the report's recommendations.

IBE at the 16th European Epilepsy Congress 2026

IBE will have a strong presence at the 16th European Epilepsy Congress (EEC 2026), held in Athens, Greece, from 5–9 September 2026. The congress is organised by the International League Against Epilepsy (ILAE) and brings together clinicians and other professionals.

Quick reference

A caution worth noting

The IBE homepage carries a warning about email phishing scams: fraudulent emails have been sent claiming to come from members of the IBE Executive Committee, and these are not connected to IBE. If you plan to act on any of the above news items, verify invitations and requests through the official website rather than through uninvited email.

To follow these developments, start from the news and events sections of ibe-epilepsy.org, where each item is published with its own page.