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Practical guides

What Research and Treatment Progress Is Underway for HHT?
HHT research is moving on two fronts at once: a treatment pipeline that currently includes 15 therapies, and a care network of more than 55 HHT Cente…
How to Find HHT Care or a Center of Excellence Near You
Cure HHT points people with HHT toward two routes for specialist care: an HHT Center of Excellence, where multiple specialists coordinate around the …
I Was Just Diagnosed With HHT — What Should I Do Next?
A new HHT diagnosis is a starting point, not a finish line. The most useful first move is to find out what needs to be screened, then build a care pl…
What Is HHT (Hereditary Hemorrhagic Telangiectasia)?
HHT (hereditary hemorrhagic telangiectasia), also called Osler-Weber-Rendu syndrome, is a genetic disorder that causes malformed blood vessels to for…
What Is Cure HHT and Who Does It Serve?
Cure HHT is a nonprofit organization that describes itself as "the cornerstone of the HHT community." It serves patients, families, caregivers, clini…