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What is The Migraine Trust?
The Migraine Trust is a UK charity focused on migraine. Its site describes it as the only UK migraine charity providing information and support, campaigning for awareness and change, and funding and promoting research. In practice, it serves as a starting point for people with migraine, their families, employers and anyone seeking reliable UK-oriented guidance.
What it offers
- Information and support: Free, confidential information and support for anyone affected by migraine, with events through the year and several ways to get in touch.
- Work and migraine: Practical information on managing migraine at work, plus a workplace pledge campaign asking employers to do more for staff with migraine.
- Children and young people: Dedicated help for younger people with migraine.
- Research and news: Updates on migraine research, treatments and campaigns, including blog-style pieces from clinicians.
- Campaigning and fundraising: Opportunities to campaign for better care and awareness, take part in a weekly lottery, join running events, or donate.
- Personal stories: First-person accounts, such as a basketball player describing how migraine nearly ended his career.
Who it is for and how to use it
If you have just been diagnosed, start with the general information and support pages, then look at the work section if migraine is affecting your job. If you are an employer or manager, the workplace pledge and work guidance are the most directly useful parts. Parents and younger readers should go to the children and young people section. For a wider UK perspective, NHS covers migraine symptoms and treatment, and MigraineAgain offers a more international, patient-oriented view.
A practical first step: note the two or three situations where migraine disrupts your life most, then use the site's search to find the matching section rather than reading everything at once.
How can The Migraine Trust help me manage migraine at work?
The Migraine Trust addresses work-related migraine through a mix of practical guidance, workplace advocacy and direct support. Its work and migraine section covers managing symptoms on the job, talking to employers and understanding your rights, while its free, confidential information service can help with individual questions. The charity also runs a workplace pledge asking employers to do more for staff with migraine, so you can point your manager or HR team toward a concrete commitment rather than raising the issue cold.
For a reader scenario: if you are a teacher or office worker losing days to attacks, start with the work guidance to identify adjustments worth requesting, such as flexible hours, a quieter space or time away from screens. Then use the pledge and campaign material as leverage in that conversation, and contact the support service if you need help framing your case or want to know what others have found effective. The trade-off is that the charity offers information and advocacy, not legal representation or clinical treatment, so for formal disputes or medication decisions you would still need an occupational health service, union or GP.
For comparison, other organisations cover adjacent ground:
| Organisation | Best for |
|---|---|
| The Migraine Trust | UK-focused work guidance, employer pledge, free information service |
| NHS | Clinical overview of migraine and treatment options |
| Acas | Employment rights and workplace dispute advice |
A sensible next step is to read the work section, note two or three specific adjustments you want, and ask your employer to sign the pledge before your next review meeting.
What support does The Migraine Trust offer for children and young people with migraine?
The Migraine Trust provides dedicated information and support aimed at children and young people with migraine, alongside material for the adults around them. Its site frames this as a distinct area of help, separate from its general support for adults, recognising that young people face particular issues at school, at home and socially.
What the support covers
- Information written for young people themselves. The charity addresses children and teenagers directly, so a young person can read about migraine in their own right rather than only through a parent's account.
- Guidance for parents, carers and schools. Because children rarely manage migraine alone, the same material is useful to families and to staff who need to understand absences, triggers and classroom adjustments.
- A route into wider support. The Trust describes free, confidential information and support for everyone affected by migraine, with events through the year and several ways to get in touch. Young people and their families can use this alongside the children's pages.
- Practical framing around daily life. Its work-focused guidance for adults shows the same practical approach; for younger people the equivalent questions are school attendance, exams, sport and social plans.
How to use it
Start with the children and young people section of The Migraine Trust and read it with your child, then keep a simple diary of attacks, timing and possible triggers to take to a GP appointment. If migraine is disrupting school, ask the school's SENCo or pastoral lead what adjustments are possible; the Trust's explanatory material can support that conversation. For a broader clinical view, NHS covers when to seek urgent help, and National Migraine Centre offers advice on treatment options.
The main limitation to expect: this is information and support, not a diagnosis or a treatment service, so it complements rather than replaces specialist care.
How can I get involved or volunteer with The Migraine Trust?
You can get involved with The Migraine Trust through campaigning, fundraising, donating, or signing its workplace pledge, and you can make direct contact through the charity’s support and events channels to ask about volunteering.
Ways to get involved
- Campaign with us: Join efforts to improve care, support and awareness for people with migraine. This is a good fit if you want to influence policy, workplace practices or public understanding rather than give time on a regular rota.
- Fundraise or take part in events: The site highlights running events and a weekly lottery as ways to raise money. Choose an event if you want a fixed commitment with a clear goal; choose the lottery if you prefer a low-effort, recurring contribution.
- Donate: A straightforward option if time is limited but you want to support the charity’s work.
- Sign the workplace pledge: If you are an employer, manager or HR professional, this is the most direct route to improving support for staff with migraine.
- Use and share the support services: The charity offers free, confidential information and support, plus events through the year. If you are affected by migraine, getting in touch is itself a form of engagement; if you are not, sharing these routes with someone who is can help.
Asking about volunteering
The page’s involvement section centres on campaigning, fundraising, donating and events rather than a named volunteering programme. The practical next step is to contact the charity through its Get support or Get involved pages and ask specifically what volunteer roles are open, what time commitment they need, and whether opportunities are in person or remote. That question is worth asking directly because UK charities often have local fundraising groups, office-based roles and campaign volunteering that are not all advertised in the same place.
How to choose
| If you want to… | Start with… |
|---|---|
| Improve workplace support | The workplace pledge |
| Give time flexibly | Ask about volunteering via the support or involvement pages |
| Raise money with a clear target | Running events |
| Contribute regularly with little effort | The weekly lottery |
| Change policy and awareness | Campaign with us |
| Support without giving time | Donate |
For comparison, other UK organisations such as Migraine UK and NHS provide information on migraine, but The Migraine Trust is the page’s own charity route for campaigning, fundraising and workplace advocacy.
What does The Migraine Trust do to campaign for better migraine care?
The Migraine Trust campaigns by pushing for greater awareness and understanding of migraine, and by turning that awareness into practical change in workplaces and care settings. Its campaign work is aimed at improving care, support and awareness for people living with migraine across the UK.
Where the campaigning shows up
- Workplace pledge. The site’s lead campaign asks whether your workplace could do more to support staff with migraine, and invites employers to sign a workplace pledge as a first step. This is a concrete, employer-facing ask rather than a general awareness message.
- Public campaigning. “Campaign with us” invites people with migraine, carers and allies to join efforts to improve care, support and awareness.
- Evidence and reports. Campaign messaging is tied to findings such as a report stating that nine in ten people with migraine say they are not believed — the kind of statistic used to argue that migraine is under-recognised and under-treated.
- Information as advocacy. Free, confidential information and support, plus dedicated guidance on migraine and work and help for children and young people, give campaigners and patients something practical to point to when arguing for better care.
Who this is for
If you have migraine and want your employer to change, the workplace pledge is the most direct route: it gives you a named ask to take to a manager or HR team. If you want to influence care more broadly, the campaign pages are the entry point. Employers and HR professionals can use the same material to review policies such as sickness absence, lighting, screen use and flexible working.
A practical next step
Before approaching your employer, note how migraine affects your work — missed days, reduced hours, triggers in the workplace — and check the work-related guidance on The Migraine Trust. For clinical care questions, the UK charity sector also includes Migraine UK; for research-focused information, see American Migraine Foundation if you are outside the UK. Decide whether your goal is a single workplace change or a wider care issue, then pick the campaign route that matches it.
How can I access free information and support from The Migraine Trust?
The Migraine Trust offers free, confidential information and support to anyone affected by migraine, whether you live with the condition yourself or are supporting someone who does. You do not need a referral or membership to use these services.
Ways to get support
- Information and guidance: The charity provides practical information on living with migraine, including a dedicated section on managing migraine and work, and separate help for children and young people with migraine.
- Direct contact: The "Get support" area is the starting point for questions, whatever your migraine history. It covers ways to get in touch and events held throughout the year.
- Email updates: You can sign up for the charity's e-bulletin to receive migraine news, research and campaign updates.
- Community and campaigns: Reading personal stories, joining campaigns, or taking part in fundraising and running events are other ways to connect with the organisation and other people affected by migraine.
A practical next step
Start with the "Get support" section of The Migraine Trust and look for the contact route that suits you. If your main concern is employment, go straight to the "Migraine and work" pages; if you are a young person or a parent, use the children and young people section instead. Have a short written summary ready: how often you get attacks, your main symptoms, current treatments and what you need help with. That makes any phone call or message more productive.
Choosing the right route
| If your situation is… | Best starting point |
|---|---|
| You have a general question about migraine | General information and "Get support" pages |
| Migraine is affecting your job | "Migraine and work" section |
| You are a child, young person or parent | Children and young people section |
| You want ongoing news and research updates | E-bulletin sign-up |
For urgent or severe new symptoms, contact NHS 111 or your GP rather than relying on charity information alone.
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