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What is Next Step Fund, Inc.?

Next Step Fund, Inc. is a nonprofit that runs free programs for young people living with serious illness, with a stated mission to help them "create their brightest future." Its work centers on three things: community (meeting peers who share the experience of illness), music (writing, performing, recording or listening to original songs with a music therapist), and mentorship (setting and pursuing goals at school, on the job and beyond).

What the programs look like

  • Community: group connection and friendship among young people on similar medical journeys.
  • Music: a "Song Studio" where participants create original songs; the site cites 80+ original songs written there.
  • Mentorship: individualized goal-setting and support.
  • Campference: a mash-up of summer camp and conference, described as "all the fun and the knowledge minus the boring stuff."
  • Comic books: When Lightning Strikes, a series created by and for youth living with sickle cell disease.

The site reports 11,000+ program attendees since 2001, a 9.8/10 recommendation score from participants, and 95% of young people saying they feel empowered to make life changes.

Who it's for

Young people living with serious illness, and by extension the families and clinicians who want to point them toward peer support and creative outlets. The participant quotes on the site stress not feeling alone and becoming more open about their disease—useful signals if you're weighing whether a teen would engage.

A practical next step

If you're a parent, patient or care provider, start with the "What We Do" and "FAQs" sections to check eligibility and how programs run, then look at the Events page for upcoming sessions. As a general criterion, prioritize programs that combine peer community with a skill or creative outlet, since that combination is what this organization is built around.

Who is eligible to join Next Step's free programs for young people living with serious illness?

Next Step describes its free programs as being for young people living with serious illness, and its mission is to help them "create their brightest future." That is the eligibility group named on the site; it does not publish an age range, a list of qualifying diagnoses, or a residency requirement on the page.

What the page does make clear

  • The audience is defined by illness and age together: participants are young people who are living with a serious illness, not their siblings, parents or clinicians.
  • Programs are free: the homepage invites visitors to "join our upcoming fun, life-changing programs for free."
  • The offering is built around three routes: community (meeting peers on a similar journey), music (writing, performing, recording or listening with a music therapist) and mentorship (setting school, work and life goals).

A practical next step

If you are asking for yourself or a young person you care for, treat the homepage as an introduction rather than an eligibility test. The site's FAQs and Contact Us pages are the places to confirm whether a particular diagnosis, age or location fits, and to ask what a first program involves. A useful question to send: "My young person is [age] and living with [condition] — which of your programs would be the right first step, and what would they need to bring or arrange?"

For comparison, other organizations serving young people with serious illness define eligibility quite differently — some by specific diagnosis, some by age band, some by hospital referral. Reading those criteria alongside Next Step's will show you quickly whether Next Step is the right fit or whether another group covers the situation more directly.

What is a Campference and how does it combine summer camp with a conference?

A Campference is Next Step's mash-up of a summer camp and a conference: the fun, friendship and shared experience of camp combined with the learning and goal-setting of a conference. According to Next Step Fund, it is designed to keep "all the fun and the knowledge minus the boring stuff."

How the two halves fit together

  • Camp side: community, fun and peer support. Participants meet other young people on the same journey, which matches the participant quote on the site: "Everyone there knew what I was going through. They'd all lived it."
  • Conference side: structured learning and practical planning. Next Step's broader programs include mentorship that helps participants set and reach goals at school, on the job and beyond, and music sessions where they write, perform or record original songs.

In practice, a Campference is aimed at young people living with serious illness, the group Next Step says it empowers "to create their brightest future." A reader considering it should ask two things: whether they want the social, peer-led side (meeting others, having fun) or the skills-and-goals side (planning, mentorship), and whether they prefer a camp-style informal setting over a conventional conference. The Campference is built for people who want both at once.

Next step: check the events and program pages at Next Step Fund for upcoming Campference dates, then compare the format with Next Step's other offerings, such as Community, Music and Mentorship, to see which fits your goals.

How does Next Step's music therapy and Song Studio help participants cope with serious illness?

Next Step uses music as a practical coping tool rather than a performance goal. The site describes a music therapist helping young people living with serious illness "write, perform, record or listen to original songs," and its Song Studio has produced 80+ original songs. The emphasis on writing and recording gives participants a way to put difficult experiences into words and hear them back, while the listening option means no one has to create something to take part.

What the different entry points offer

Route What it involves Who it may suit
Writing and recording Creating original songs with a music therapist Participants who want to process their illness actively and leave with something concrete
Performing Sharing songs with others at Next Step Those comfortable being visible and wanting peer recognition
Listening Taking in others' music without creating Participants who feel drained, shy or new to the community

Why this fits the wider mission

Next Step frames its work as empowering young people with serious illness to "create their brightest future," and music sits alongside community and mentorship rather than standing alone. That matters: a recording session can build confidence and a sense of identity, but the friendships formed around it may be what sustains someone during treatment. The site's participant quotes—"I've become so much more open and honest about my disease" and "It's so comforting to know that I am not alone"—point to both effects.

A concrete scenario

Picture a teenager recently diagnosed who has stopped talking about their condition at school. A Song Studio session offers a low-stakes way to name what is happening, and the finished track becomes evidence of capability rather than illness. A peer who prefers not to write might simply listen and later join a Campference.

How to decide if it is a fit

Ask whether the young person wants to make something or mainly wants company; Next Step's model allows either. If creative expression is the priority and illness-specific peer support is secondary, a general youth arts organization may be enough. If the illness experience needs to be central, the combination of music therapy and mentorship here is the distinguishing feature. For related creative-health programs, compare Music for Healing if you are checking broader options. The next step is to look at the Song Studio page and the program calendar together, since the music offering is most useful when paired with an upcoming event.

How can I volunteer, donate, or become a corporate partner with Next Step?

Next Step lists three main ways to get involved: volunteering, donating, and corporate partnership. Each has its own page in the site's "How You Can Help" section, so the practical first step is to open the one that matches what you can offer. Donations support free programs for young people living with serious illness; the site describes those programs as free and reports more than 11,000 attendees since 2001. Volunteer options are grouped with fundraising help, which suggests roles beyond direct program work may be available. Corporate partners are treated as a separate track, which is typical for businesses that want to give money, sponsor events, or involve employees.

Choosing the right route

If you want to… Start with What to expect
Give money without a company involved The Donate page A direct way to fund free programs
Give time or skills The Volunteer page Program and fundraising volunteer roles
Give as a business The Corporate Partners page Partnership arrangements rather than a one-off gift

For a concrete example: an employee group that wants a shared cause might use the corporate route to combine a donation with volunteer days, while an individual who was moved by the participant quotes on the homepage can simply donate. If you are unsure which fits, contact the organization through the details on Next Step Fund and describe what you can offer; that avoids choosing a form that does not match your intent.

What mentorship support does Next Step offer for school, work, and personal goals?

Next Step offers mentorship as one of its three core program areas, alongside community and music. The stated aim is to help young people living with serious illness "set and reach new goals at school, on the job and beyond," with the organization describing a personalized plan for success rather than a single fixed curriculum. Because the site frames mentorship this way—goal-setting plus individualized planning—the practical value for a participant is likely a structured conversation about their own next steps, whether that's finishing school, finding work, or building confidence, rather than a one-size-fits-all class.

Where mentorship sits in the wider program

Mentorship is presented as part of a broader mix, so it helps to see what each piece is for:

Program area Stated purpose Best fit for someone who…
Mentorship Set and reach goals at school, on the job and beyond; personalized plan Wants direction, accountability, or help turning an ambition into steps
Community Meet peers on the same journey; friendship, fun and support Feels isolated and wants to know others "knew what I was going through"
Music Write, perform, record or listen with a music therapist Wants creative expression or a non-talk-based way to process illness

The site's participant quotes support this split: several emphasize not feeling alone and becoming more open about their illness, which suggests the community and mentorship strands reinforce each other. The reported figures—9.8/10 would recommend the programs to a peer and 95% feeling empowered to make life changes—are the organization's own measures, useful as a signal of participant satisfaction rather than proof of outcomes for any individual.

A concrete way to use it

If you're a young person considering Next Step, or a family member helping someone decide, treat mentorship as a goal-clarification service: arrive with one specific aim (returning to school part-time, preparing for a first job, or rebuilding a daily routine) and ask how the personalized plan would be built around it, and how it connects to the free programs and Campference events the site highlights. That framing turns a general offer into a testable next step.

Related questions

More questions →
What Programs Does Next Step Offer for Young People with Serious Illness?

Next Step Fund, Inc. (nextstepnet.org) offers three core programs—Community, Music, and Mentorship—for young people living with serious illness, and its site states that upcoming programs are free to join. The organization's mission is to empower young people living with serious illness to "create their brightest future," and each program addresses a different part of that goal: peer connection, creative expression, and practical goal-setting.

The Three Core Programs

Community

Community is the peer-support side of Next Step. The site describes it as a place where "you're not alone"—participants meet others on the same journey and build friendship and support. This is the program to look at if the main need is connection with people who understand the experience of living with a serious illness.

Music

Music is framed as "music as medicine," delivered with a music therapist. Participants can write, perform, record, or listen to original songs. The site's numbers back this up: 80+ original songs have been written in Next Step's Song Studio. If the interest is creative expression or recording, this is the relevant program.

Mentorship

Mentorship focuses on setting and reaching goals at school, on the job, and beyond, with a personalized plan. Choose this when the priority is forward-looking: finishing school, starting work, or building concrete next steps.

Program What it involves Best fit if you want…
Community Peer connection, friendship, support To meet others facing similar challenges
Music Songwriting, performing, recording, listening with a music therapist A creative outlet or studio experience
Mentorship Personalized goals for school, work, and beyond Help planning and reaching practical goals

Other Ways to Get Involved

Beyond the three core programs, the site lists additional activities:

  • Campference — described as summer camp mashed up with a conference: "all the fun and the knowledge minus the boring stuff."
  • Comic books — When Lightning Strikes, a series created by youth living with sickle cell disease for youth living with sickle cell disease.
  • Song Studio releases — original songs from Next Step artists available to listen to.
  • Events and fundraising — including a mention of running the 2027 Boston event, plus volunteer and corporate partner options.

What the Impact Numbers Suggest

The site reports 11,000+ program attendees since 2001, a 9.8/10 recommendation score from peers, and 95% of young people feeling empowered to make life changes. Participant quotes emphasize not feeling alone, becoming more open about their illness, and feeling understood by people who had "lived it." These figures are the organization's own reporting, but they indicate that peer connection is a consistent theme across programs.

How to Decide Where to Start

  • If isolation is the main concern, start with Community.
  • If creative expression or music matters most, look at Music and the Song Studio.
  • If school, work, or planning is the priority, Mentorship is the match.
  • If you want a taste of everything in a camp-like setting, watch for the next Campference.

The site states that upcoming programs are free to join; check the Programs page for current schedules and how to sign up.

What Is a Campference at Next Step?

A Campference is Next Step's hybrid of a summer camp and a conference: the fun of camp plus the learning of a conference, "minus the boring stuff," as the organization puts it. It is one of the free, life-changing programs Next Step runs for young people living with serious illness, and it sits alongside the organization's year-round Community, Music, and Mentorship offerings.

Where the Name Comes From

The word is a literal mashup. Next Step describes a Campference as what you get "when you mash up summer camp and a conference" — all the fun and the knowledge, without the dull parts. The format matters because it signals what to expect: Campferences are social and playful like camp, but structured around learning and personal growth like a conference.

What Happens at One

The public program pages don't publish a minute-by-minute agenda, but the site's examples and participant quotes show the flavor:

  • Community and peer connection. Participants consistently describe the value of being with others who share their experience. One participant said, "Everyone there knew what I was going through. They'd all lived it." Another: "It's so comforting to know that I am not alone."
  • Music and creative expression. Music is central to Next Step's model — the site calls it "music as medicine" — and the Song Studio has produced 80+ original songs. Campference content on the site includes recordings tied to specific sessions, such as "I Know Me (AM)," labeled as a Fall Campference piece.
  • Personal growth and goal-setting. Next Step's mentorship strand focuses on setting and reaching goals at school, on the job, and beyond. Participant quotes point to outcomes like becoming "so much more open and honest about my disease" and feeling empowered to make life changes.

How It Fits Into Next Step's Programs

Next Step's mission is to empower young people living with serious illness to create their brightest future. Its programs are organized into three areas:

Program area What it offers
Community Meeting peers on the same journey; friendship, fun, and support
Music Writing, performing, recording, or listening to original songs with a music therapist
Mentorship Personalized plans for success at school, work, and beyond

Campferences function as event-style gatherings within this lineup — the site lists them under "Events" and features them in its "What's next at Next Step?" rotation of upcoming programs. They are presented as free to join.

Who It's For

Next Step works with young people living with serious illness. The site's own materials — including a comic book series created by youth with sickle cell disease for youth with sickle cell disease — show that participants are directly involved in shaping content. If you're considering a Campference, the relevant question is whether you're a young person navigating a serious illness and want peer community, creative outlets, and goal support in one setting.

Evidence of Impact

Next Step publishes aggregate numbers rather than Campference-specific results:

  • 11,000+ program attendees since 2001
  • 9.8/10 would recommend Next Step programs to a peer
  • 95% of young people feel empowered to make life changes
  • 80+ original songs written in the Song Studio

These figures cover all programs, so they indicate overall program satisfaction rather than a measured Campference outcome.

How to Take the Next Step

The site's main entry points are its Programs section (with a "Learn more" link on the Campference description), its Events page for upcoming sessions, and a contact form. Because dates, eligibility details, and registration steps aren't spelled out on the homepage, the practical move is to check the Events page for the next scheduled Campference and use the contact form to confirm eligibility and how to sign up.

How to Get Involved with or Support Next Step Fund

Next Step Fund offers four main ways to get involved: donating, becoming a corporate partner, volunteering or joining Team Next Step, and fundraising. All four appear in the site's "How You Can Help" navigation, alongside a "Donate" link in the header. The right path depends on whether you want to give money, give time, bring an organization in, or raise funds through an event. The site does not publish donation amounts, fees, or sign-up requirements, so treat the steps below as starting points and confirm details directly with Next Step.

Donate

Donating is the most direct option and is listed first under "How You Can Help." The site's header also carries a persistent "Donate" link, so you can reach the giving page from any page.

  • What you need: nothing beyond a willingness to give; no eligibility conditions are stated.
  • What to do: use the "Donate" link in the site header or the "Donate" item under "How You Can Help."
  • What to expect: a donation page. The site does not state accepted payment methods or whether gifts are one-time or recurring, so check the page itself before giving.
  • Check first: if you need tax information, the "Financials" page under About Us is the place to look.

Corporate partnerships

If you represent a business, the "Corporate Partners" page is the entry point. It sits under "How You Can Help," next to Donate.

  • What to do: open "Corporate Partners" to see how businesses work with Next Step.
  • What to prepare: the site does not list partnership tiers, minimums, or benefits, so plan to describe your company's goals and ask what forms of support Next Step currently accepts.
  • Why it may fit: Next Step's programs are free to participants, which makes outside support the mechanism that keeps them running. A partnership is a way to fund that directly.

Volunteer and Team Next Step

Two separate paths cover giving time:

  • Volunteer — listed under "How You Can Help." Use this if you want to contribute time to programs or operations. The site does not specify roles, time commitments, or screening steps, so ask about current openings.
  • Team Next Step — listed under Events. This is the athletic or event-based fundraising route. The homepage points to a specific upcoming event ("Run the 2027 Boston"), which suggests Team Next Step is tied to named races or challenges. Check the Events section for the current event and its registration details.

Fundraising events

"Fundraising" appears twice in the navigation—once under Events and once under How You Can Help—so there are two angles: attending or participating in Next Step's own events, and running your own fundraiser on its behalf.

  • Next Step's events: the Events section lists programs and fundraising events. The homepage highlights upcoming programs as free to join, but that refers to participant programs, not fundraising events; don't assume event registration is free.
  • Your own fundraiser: the "Fundraising" page under How You Can Help is the starting point. The site does not describe a toolkit or platform, so ask Next Step what it provides before you set up a page.

Choosing between the options

If you want to… Start here Confirm before committing
Give money with minimal effort Donate (header or How You Can Help) Payment methods, one-time vs. recurring, tax receipt
Involve your company Corporate Partners Partnership forms, recognition, minimums
Give time Volunteer Roles, time commitment, screening
Combine fitness with fundraising Team Next Step (Events) Current event, registration, fundraising target
Raise money your own way Fundraising (How You Can Help) Whether a toolkit or platform is provided

A quick way to see the impact

Before choosing, the "By the Numbers" and "Impact" pages give concrete figures: more than 11,000 program attendees since 2001, a 9.8/10 recommendation score from peers, 95% of young people reporting they feel empowered to make life changes, and 80+ original songs written in the Song Studio. Participant quotes on the homepage reinforce the same point—one says, "It's so comforting to know that I am not alone." These are the outcomes your donation, partnership, or volunteer hours would support.

Practical notes

  • The site's mission statement—empowering young people living with serious illness to create their brightest future—tells you who the support serves. If your giving priorities don't match that group, another organization may fit better.
  • No pricing, fees, or login requirements for any of these paths are stated on the homepage. Don't assume any option is free or open without registration; verify on the relevant page.
  • The "Contact Us" page is the reliable fallback for any question the site leaves open, including current volunteer needs and partnership terms.
What Impact Has Next Step Fund Had on Participants?

Next Step Fund reports measurable impact across three areas: reach, satisfaction, and personal growth. Since 2001, its programs have drawn 11,000+ attendees; participants rate the programs 9.8/10 for recommending to a peer; 95% of young people say they feel empowered to make life changes; and 80+ original songs have been written in its Song Studio. These figures describe self-reported outcomes from the organization's own "By the Numbers" reporting, not an independent study—so treat them as the organization's account of its impact rather than a controlled evaluation.

The Numbers at a Glance

Measure Reported figure What it suggests
Program attendees since 2001 11,000+ Long-running reach across two decades
Would recommend to a peer 9.8/10 Very high participant satisfaction
Feel empowered to make life changes 95% Broad self-reported growth
Original songs in Song Studio 80+ Sustained creative output, not a one-off activity

The 9.8/10 and 95% figures are the most decision-relevant: they indicate that participants themselves—young people living with serious illness—experience the programs as worthwhile and personally transformative. The 80+ songs figure is a useful proxy for depth of engagement in the music program specifically.

What Participants Say

The organization publishes short participant quotes that illustrate the experience behind the numbers:

  • "It's so comforting to know that I am not alone."
  • "I've become so much more open and honest about my disease."
  • "Everyone there knew what I was going through. They'd all lived it."
  • "Instead of falling off a cliff, now it feels like maybe, I can fly."

These point to two recurring themes: peer connection (meeting others on the same journey) and personal growth (greater openness, a sense of possibility). That aligns with Next Step's stated mission—empowering young people living with serious illness to "create their brightest future"—and with its three program pillars: Community, Music, and Mentorship.

Reading the Evidence Carefully

A few caveats help you weigh these claims:

  • Source of the data. All figures and quotes come from Next Step Fund's own website. They are not attributed to an external evaluator, so they reflect the organization's reporting.
  • What "empowered" means. The 95% figure measures how participants feel, not clinical or long-term outcomes. It is a strong signal of perceived value, not proof of lasting change.
  • Sample and timing. The site does not break down response rates or survey timing, so the numbers are best read as an overall summary rather than a rigorous longitudinal finding.

Where to Verify or Learn More

If you want to see the impact evidence firsthand, the organization's site links to its By the Numbers section, participant stories under In Their Words, and the Song Studio recordings. Its Impact and Financials pages are the natural places to check for fuller reporting before deciding whether to engage, volunteer, or donate.

What Is Next Step Fund, Inc. and Who Does It Help?

Next Step Fund, Inc. is a nonprofit whose mission is to empower young people living with serious illness to create their brightest future. It serves youth facing serious illness and offers its programs for free, bringing them together through community, music, and mentorship. Since 2001, more than 11,000 people have attended its programs.

Who Next Step Serves

The organization's stated focus is young people living with serious illness. Its programs are built around peer connection: participants meet others on the same journey, and the site quotes one participant saying, "Everyone there knew what I was going through. They'd all lived it."

The reported outcomes reflect that peer-centered approach:

Measure Reported figure
Program attendees since 2001 11,000+
Would recommend programs to a peer 9.8/10
Young people who feel empowered to make life changes 95%
Original songs written in Next Step's Song Studio 80+

The Three Core Programs

Community

A space to meet peers facing similar health experiences, with friendship and support as the goal. The site frames it simply: "You're not alone."

Music

Music as medicine, led by a music therapist. Participants can write, perform, record, or listen to original songs in the Song Studio.

Mentorship

Personalized goal-setting for school, work, and beyond, with a plan built around each participant's success.

The "Campference" Format

Next Step describes a Campference as summer camp mashed up with a conference — "all the fun and the knowledge minus the boring stuff." It appears to be a recurring event format that combines recreation with learning; the site references a Fall Campference in 2023 among its stories.

Participant-Created Resources

Two resources are made by participants themselves:

  • Comic books. When Lightning Strikes is a comic book series created by youth living with sickle cell disease, for youth living with sickle cell disease.
  • Original music. Songs from the Song Studio are available to listen to, alongside participant stories and a recording studio page.

How to Get Involved

  • Join a program. The site invites young people to join upcoming programs for free.
  • Donate or partner. There are pages for individual donations, corporate partners, and fundraising.
  • Volunteer. A Team Next Step volunteer page is listed.
  • Stay informed. The Press Room, Financials, and Board & Staff pages cover organizational details.

For eligibility specifics or to sign up, the program pages and contact form on nextstepnet.org are the direct route; the site does not publish detailed enrollment criteria in the sections reviewed here.

Website Overview

An established domain and managed infrastructure suggest continuity of operations and may support dependable delivery, although neither guarantees service quality. Several search or sharing settings need attention. Together they may make snippets, preview images or preferred URLs less consistent across platforms.

Domain and Registration

Registered in 2001, this domain has about 24 years of history. That suggests continuity, although ownership and purpose may have changed. Transfer-protection status is present, helping reduce the risk of unauthorized domain transfers. The registrar is GoDaddy.com, LLC, a widely used domain service provider. The domain uses the common .org extension, which is not an independent safety signal.

DNS and Email

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HTTP and Browser Security

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Technology Stack Analysis

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Search and Social Sharing

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